Tuesday, March 29, 2011

History up to March 2010



When I get a computer back I will post his birth story since that is really the start of his Big Story. for now I would like to give some history of his current struggles. Last day of July 2009, Little Guy came down a large twisty slide and used his arms to catch him as he fell. He earned a buckle fracture on his right radius and ulna right where they join the wrist. He was in a cast for a month and seemed to heal well and go on with life. Doctors tell me now that this is likely unrelated to the lesions he has now.

In the Fall of 2009, he was in a 3 yo special ed program three days a week in our school district. He started limping off and on. they noticed it at school and I saw it at home. I was going to ask our family doctor about it at his next well child visit, when I scheduled it in December. He also started to have headaches that would take him out. He would just go to the couch and fall asleep. December 2009 was a rough month with lots of other things happening. I never got that well child appointment made.

On Christmas Eve he was upstairs watching his brother and sister playing video games in my room. Apparently one kid pushed another kid who fell on Little Guy while he was on my bed, a mattress on the floor. His leg hurt, but no swelling or deformity so I gave him ibuprofen and carried him to Christmas Eve service at church. The next morning he would not walk downstairs to open presents. So after the present were opened I took him to urgent care and the first fracture was found. A tibea fracture. Little guy was put in a splint and we were given a referral to an orthopedic clinic.

At that clinic on the 28, we were seen by a doctor that had no bedside manner and no time for us. He did right away recognize that the fracture was a bone cyst that broke. Those usually fill in once broken. He was put in a walking cast and we were sent on our way. We came back some 4 or 5 weeks later. Little guy was x-rayed through the cast. The fracture was deemed healed enough. The cast was removed and we were sent on our way with not much instruction. Little guy never walked on the cast and after it was removed had great difficulty walking again. I went to our family doctor and asked for a referral to a pediatric orthopedist. She sent us to Gillette Children's Specialty Healthcare.

Our fist appointment with the pediatic orthopedist was St. Patrick's Day 2010. One of the things the doctor did was get an x-ray from the hips down of Little Guy standing to check for leg length differences. Lengths were OK. What wasn't was the number of lesions in all the long bones of his legs. These lesions have had many names, now we just call them lesions. We were told to start a full evaluation. I set up appointments with genetics, and nuerology.

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