This is the story of my little guy, Sam, who was born in the car on the way to the hospital. I thought that would be his big story. Little did I know how much bigger it would be getting as we journey through his Fibrous Dysplasia and Chiari 1 Malformation.
Wednesday, April 20, 2011
Nuerology.....
April 19 I took Sam to see the nuerologist for help with the headaches. We had not seen her since last May. A lot has happened since then. I took a few minutes to update her on what had happened and is happening then we dived into his headaches and talked about them for at least half an hour. she also examined him. had a hard time seeing the back of his eyes to see if the intercranial pressure was elevated. She came into the exam with the bias that the headaches were not from the chiari. but after taking Sam's history she feels it is. She then contacted the nuerosurgon to talk about Sam and the conseus is surgery will help the headaches. the nuerologist will not prescribe anything for the headaches and says to continue with the laing down and occasional iburofen/Tylenol for them. It is nice to have a second doctor validate the need for surgery. It is such a big surgery though. We have an appointment to see nurologist in mid may after the school is done with thier testing to discuss the developmental delay stuff we originally saw her for last year.
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